The 20 Best CHARGE Syndrome Doctors Near Me in Grand Rapids, MI

Find the Top CHARGE Syndrome Experts and Specialists

The 20 Best CHARGE Syndrome Doctors near Grand Rapids, MI

Last Updated: 02/22/2026

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MediFind found 49 doctor with experience in CHARGE Syndrome near Grand Rapids, MI. Of these, 45 are Experienced and 4 are Advanced.

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49 providers found
    Julie A. Conley
    Advanced in CHARGE Syndrome
    Advanced in CHARGE Syndrome

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Julie Conley is a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Legius Syndrome, RASopathies, Neurofibromatosis, and Marcus Gunn Phenomenon.

    Brooke E. Geddie
    Advanced in CHARGE Syndrome
    Advanced in CHARGE Syndrome

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Lenz Microphthalmia Syndrome, Microphthalmia Syndromic 9, Micropthalmia Associated with Colobomatous Cyst, Marcus Gunn Phenomenon, and Vitrectomy.

    Linda Z. Rossetti
    Advanced in CHARGE Syndrome
    Pediatrics | Medical Genetics
    Advanced in CHARGE Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Spanish

    Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

    Learn about our expert tiers
    John W. Winters
    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    37+ years
    Languages Spoken:
    English

    John Winters is a Pediatrics provider in Grand Rapids, Michigan. Dr. Winters has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Wildervanck Syndrome, CHARGE Syndrome, and Koolen De Vries Syndrome.

    Shefali Aggarwal
    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Shefali Aggarwal is a Pediatrics provider in Grand Rapids, Michigan. Dr. Aggarwal has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Chondrodystrophy, Microcephaly Deafness Syndrome, CHARGE Syndrome, and Early Infantile Epileptic Encephalopathy.

    Lisa D. Maskill
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Maskill is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Maskill has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Brachydactyly Type C, Brachydactyly Type B, Sprengel Deformity, and Liebenberg Syndrome. Dr. Maskill is currently accepting new patients.

    Jessica R. Priestley
    Experienced in CHARGE Syndrome
    Pediatrics | Medical Genetics
    Experienced in CHARGE Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

    Meghan R. Behrmann
    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Neurodevelopmental - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Meghan Behrmann is a Pediatrics provider in Grand Rapids, Michigan. Dr. Behrmann has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Delayed Growth, Cardiofaciocutaneous Syndrome, and 15q11.2 Microdeletion. Dr. Behrmann is currently accepting new patients.

    Casey J. Madura
    Experienced in CHARGE Syndrome
    General Surgery
    Experienced in CHARGE Syndrome
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Casey Madura is a General Surgeon in Grand Rapids, Michigan. Dr. Madura has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Lhermitte-Duclos Disease, PIK3CA-Related Overgrowth Spectrum, Koolen De Vries Syndrome, CHARGE Syndrome, and Craniectomy.

    John W. Kemppainen
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Kemppainen is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Kemppainen has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Clubfoot, Legg-Calve-Perthes Disease (LCPD), Knock Knees, and Small Patella Syndrome. Dr. Kemppainen is currently accepting new patients.

    Megan D. Quist
    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Neurodevelopmental - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Megan Quist is a Pediatrics provider in Grand Rapids, Michigan. Dr. Quist has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial.

    Lauren E. Fletcher
    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English

    Lauren Fletcher is a Pediatrics provider in Grand Rapids, Michigan. Dr. Fletcher has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Neurofibromatosis, Marcus Gunn Phenomenon, Gomez Lopez Hernandez Syndrome, and Legius Syndrome.

    Philip D. Nowicki
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    22+ years
    Languages Spoken:
    English
    Accepting New Patients

    Philip Nowicki is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Nowicki has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Slipped Capital Femoral Epiphysis, Clubfoot, Legg-Calve-Perthes Disease (LCPD), and Knock Knees. Dr. Nowicki is currently accepting new patients.

    Maala S. Daniel
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients

    Maala Daniel is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Daniel has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Short Stature (Growth Disorders), Familial Short Stature (FSS), and Idiopathic Short Stature (ISS). Dr. Daniel is currently accepting new patients.

    John N. Schuen
    Experienced in CHARGE Syndrome
    Pediatrics | Pediatric Pulmonology
    Experienced in CHARGE Syndrome
    Pediatrics | Pediatric Pulmonology

    Helen DeVos Children's Hospital Pulmonary And Sleep Medicine

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    36+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Schuen is a Pediatrics specialist and a Pediatric Pulmonologist in Grand Rapids, Michigan. Dr. Schuen has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Cystic Fibrosis, Laryngomalacia, Wolf-Hirschhorn Syndrome, and Periodic Limb Movement Disorder. Dr. Schuen is currently accepting new patients.

    Aditya V. Dewoolkar
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Aditya Dewoolkar is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Dewoolkar has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Septo-Optic Dysplasia, Familial Hypopituitarism, and Short Stature (Growth Disorders). Dr. Dewoolkar is currently accepting new patients.

    Christel M. Keefe
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Christel Keefe is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Keefe has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Mixed Gonadal Dysgenesis, Perrault Syndrome, and Turner Syndrome. Dr. Keefe is currently accepting new patients.

    Joseph A. Petronio
    Experienced in CHARGE Syndrome
    General Surgery
    Experienced in CHARGE Syndrome
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Petronio is a General Surgeon in Grand Rapids, Michigan. Dr. Petronio has been practicing medicine for over 42 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Lhermitte-Duclos Disease, Gorlin-Chaudhry-Moss Syndrome, PIK3CA-Related Overgrowth Spectrum, Rathke Cleft Cyst, and Craniectomy. Dr. Petronio is currently accepting new patients.

    Jason P. Thomas
    Experienced in CHARGE Syndrome
    Pediatric Nephrology
    Experienced in CHARGE Syndrome
    Pediatric Nephrology

    Corewell Health Pediatric Nephrology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5201, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jason Thomas is a Pediatric Nephrologist in Grand Rapids, Michigan. Dr. Thomas has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Nephrotic Syndrome, Glomerulonephritis, Lowe Syndrome, and PIK3CA-Related Overgrowth Spectrum. Dr. Thomas is currently accepting new patients.

    Yaw Appiagyei
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in CHARGE Syndrome
    Pediatric Endocrinology | Endocrinology

    Corewell Health Pediatric Endocrinology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 1800, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    39+ years
    Languages Spoken:
    English
    Accepting New Patients

    Yaw Appiagyei is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Appiagyei has been practicing medicine for over 39 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Septo-Optic Dysplasia, Short Stature (Growth Disorders), and Familial Short Stature (FSS). Dr. Appiagyei is currently accepting new patients.

    Showing 1-20 of 49

    Last Updated: 02/22/2026

    What is the definition of CHARGE Syndrome?

    CHARGE syndrome is a congenital condition (present from birth) that affects many areas of the body. CHARGE stands for coloboma, heart defect, atresia choanae (also known as choanal atresia), restricted growth and development, genital abnormality, and ear abnormality. Signs and symptoms vary among people with this condition; however, infants often have multiple medical conditions. The diagnosis of CHARGE syndrome is based on a combination of major and minor characteristics. In more than half of all cases, genetic changes in the CHD7 gene cause CHARGE syndrome. When caused by a genetic change in the CHD7 gene, it can be inherited in an autosomal dominant pattern; although most cases result from new (de novo) genetic changes in the gene and occur in people with no history of the condition in their family.

    When should I see a CHARGE Syndrome doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CHARGE Syndrome doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CHARGE Syndrome doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CHARGE Syndrome doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CHARGE Syndrome doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CHARGE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CHARGE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CHARGE Syndrome doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CHARGE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CHARGE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CHARGE Syndrome doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the CHARGE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CHARGE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CHARGE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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