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    Last Updated: 10/30/2025

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    MediFind found 69 doctor with experience in CHARGE Syndrome near Grand Rapids, MI. Of these, 64 are Experienced and 5 are Advanced.

    Location
    LocationClose
    69 providers found
      Julie A. Conley
      Advanced in CHARGE Syndrome
      Advanced in CHARGE Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Julie Conley is a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Strabismus, Legius Syndrome, Esotropia, and RASopathies.

      Brooke E. Geddie
      Advanced in CHARGE Syndrome
      Advanced in CHARGE Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English

      Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 20 years and is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Daniel R. Fain
      Advanced in CHARGE Syndrome
      Pediatric Neurology
      Advanced in CHARGE Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      33+ years
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Fain is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Fain has been practicing medicine for over 33 years and is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is currently accepting new patients.

      Learn about our expert tiers
      Linda Z. Rossetti
      Advanced in CHARGE Syndrome
      Pediatrics | Medical Genetics
      Advanced in CHARGE Syndrome
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

      John W. Winters
      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome

      Corewell Health Pediatric Critical Care (PICU)

      100 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      36+ years
      Languages Spoken:
      English

      John Winters is a Pediatrics provider in Grand Rapids, Michigan. Dr. Winters has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Wildervanck Syndrome, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

      Shefali Aggarwal
      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome

      Corewell Health Pediatric Critical Care (PICU)

      100 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English

      Shefali Aggarwal is a Pediatrics provider in Grand Rapids, Michigan. Dr. Aggarwal has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Chondrodystrophy, Early Infantile Epileptic Encephalopathy, Koolen De Vries Syndrome, and Microcephaly Deafness Syndrome.

      Lisa D. Maskill
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English
      Accepting New Patients

      Lisa Maskill is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Maskill has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Brachydactyly Type A2, Accessory Navicular Bone, Brachydactyly Type C, and Brachydactyly Type B. Dr. Maskill is currently accepting new patients.

      Jessica R. Priestley
      Experienced in CHARGE Syndrome
      Pediatrics | Medical Genetics
      Experienced in CHARGE Syndrome
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      7+ years
      Languages Spoken:
      English

      Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 7 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Fabry Disease, Ornithine Transcarbamylase Deficiency, Biotinidase Deficiency, and Multiple Sulfatase Deficiency.

      Meghan R. Behrmann
      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Meghan Behrmann is a Pediatrics provider in Grand Rapids, Michigan. Dr. Behrmann has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Delayed Growth, Cardiofaciocutaneous Syndrome, and Distal 18q Deletion Syndrome. Dr. Behrmann is currently accepting new patients.

      Casey J. Madura
      Experienced in CHARGE Syndrome
      General Surgery
      Experienced in CHARGE Syndrome
      General Surgery

      Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Casey Madura is a General Surgeon in Grand Rapids, Michigan. Dr. Madura has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 2, Chiari Malformation Type 1, and Hydrocephalus.

      Steven T. Deroos
      Experienced in CHARGE Syndrome
      Pediatric Neurology
      Experienced in CHARGE Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      31+ years
      Languages Spoken:
      English
      Accepting New Patients

      Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

      John W. Kemppainen
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Kemppainen is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Kemppainen has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Scoliosis, Clubfoot, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome. Dr. Kemppainen is currently accepting new patients.

      Gruschen R. Veldtman
      Experienced in CHARGE Syndrome
      Cardiology | Pediatric Cardiology
      Experienced in CHARGE Syndrome
      Cardiology | Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      34+ years
      Languages Spoken:
      English
      Accepting New Patients

      Gruschen Veldtman is a Cardiologist and a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Veldtman has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Tricuspid Atresia, Double Inlet Left Ventricle, Heart Transplant, and Stent Placement. Dr. Veldtman is currently accepting new patients.

      Seth P. Devries
      Experienced in CHARGE Syndrome
      Pediatric Neurology
      Experienced in CHARGE Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Seth Devries is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Devries has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Absence Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy in Children.

      Megan D. Quist
      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English

      Megan Quist is a Pediatrics provider in Grand Rapids, Michigan. Dr. Quist has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial.

      Lauren E. Fletcher
      Experienced in CHARGE Syndrome
      Experienced in CHARGE Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English

      Lauren Fletcher is a Pediatrics provider in Grand Rapids, Michigan. Dr. Fletcher has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Strabismus, Esotropia, Amblyopia, and Astigmatism.

      Susan L. Millard
      Experienced in CHARGE Syndrome
      Pediatric Pulmonology
      Experienced in CHARGE Syndrome
      Pediatric Pulmonology

      Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      39+ years
      Languages Spoken:
      English

      Susan Millard is a Pediatric Pulmonologist in Grand Rapids, Michigan. Dr. Millard has been practicing medicine for over 39 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Laryngomalacia, Cystic Fibrosis, Exocrine Pancreatic Insufficiency, and Vocal Cord Dysfunction.

      Carolyn Dress
      Experienced in CHARGE Syndrome
      Pediatric Pulmonology
      Experienced in CHARGE Syndrome
      Pediatric Pulmonology

      Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      8+ years
      Languages Spoken:
      English
      Accepting New Patients

      Carolyn Dress is a Pediatric Pulmonologist in Grand Rapids, Michigan. Dr. Dress has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Laryngomalacia, Trisomy 13, Duchenne Muscular Dystrophy, and Spinal Muscular Atrophy Type 2. Dr. Dress is currently accepting new patients.

      Philip D. Nowicki
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics
      Experienced in CHARGE Syndrome
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English
      Accepting New Patients

      Philip Nowicki is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Nowicki has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His top areas of expertise are Slipped Capital Femoral Epiphysis, Clubfoot, Beukes Familial Hip Dysplasia, and Spastic Diplegia Infantile Type. Dr. Nowicki is currently accepting new patients.

      Sarah Y. Badran
      Experienced in CHARGE Syndrome
      Pediatrics | Pediatric Cardiology
      Experienced in CHARGE Syndrome
      Pediatrics | Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      36+ years
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Badran is a Pediatrics specialist and a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Badran has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her top areas of expertise are Pulmonary Atresia with Ventricular Septal Defect, Mitral Atresia, Hypoplastic Left Heart Syndrome (HLHS), and Anomalous Left Coronary Artery from the Pulmonary Artery. Dr. Badran is currently accepting new patients.

      Showing 1-20 of 69

      Last Updated: 10/30/2025

      What is the definition of CHARGE Syndrome?

      CHARGE syndrome is a congenital condition (present from birth) that affects many areas of the body. CHARGE stands for coloboma, heart defect, atresia choanae (also known as choanal atresia), restricted growth and development, genital abnormality, and ear abnormality. Signs and symptoms vary among people with this condition; however, infants often have multiple medical conditions. The diagnosis of CHARGE syndrome is based on a combination of major and minor characteristics. In more than half of all cases, genetic changes in the CHD7 gene cause CHARGE syndrome. When caused by a genetic change in the CHD7 gene, it can be inherited in an autosomal dominant pattern; although most cases result from new (de novo) genetic changes in the gene and occur in people with no history of the condition in their family.

      When should I see a CHARGE Syndrome doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CHARGE Syndrome doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CHARGE Syndrome doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CHARGE Syndrome doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CHARGE Syndrome doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CHARGE Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CHARGE Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CHARGE Syndrome doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CHARGE Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CHARGE Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CHARGE Syndrome doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the CHARGE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CHARGE Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CHARGE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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